December 2, 2022

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Eat Without Food

Dominic Update 4.0 – Brown Eyed Baker

Hi everyone! I just can’t consider that we are on the cusp of Labor Working day and summer season coming to a close. The past five to 6 months have been a total blur and this summer months, in distinct, has flown by. There is been hospitals (chemo, stem cell harvest, surgical procedure), clinic appointments, and driving again and forth to New York.

But, a person foot in entrance of the other and a person working day at a time, we are grateful to be heading into a new season with a sturdy boy and hearts complete of hope.

Dominic had a chaotic very first couple weeks of August…

🔍 Initial, he had a new established of scans (MRI + MIBG) in addition one more bone marrow biopsy. The scans continue to present disorder during his bones but most of the spots are “dimmer” than just before, and the bone marrow involvement reduced by over 50%.

So, there is even now operate to do, but there is an improvement. And! Dominic did the two of the scans devoid of anesthesia (he has been sedated previously because you have to lay totally nevertheless and the MIBG is in excess of 2 hrs). He’s a rock star.

🏥 Future, he had his to start with round of immunotherapy. The antibody he’s provided targets the protein of neuroblastoma cells and considering that they normally sit on nerve cells, there is substantial nerve pain accompanying the treatment method. The infusion is shorter (45 minutes) but intense.

There is a large amount of pre-treatment and suffering management for the duration of and immediately after, and he would mainly sleep the complete rest of the working day afterward. But, the therapies are outpatient so no clinic stays, and they don’t impression counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off another huge hurdle… radiation. He did this awake with no anesthesia as well… twice a working day for 5 days, he was strapped down applying a special mask that was molded to his head and upper body to preserve his head and neck in the actual exact same place just about every time (his clavicle was radiated owing to the cluster of diseased lymph nodes that have been there, as effectively as the tumor mattress in his stomach). An wonderful lady who operates there has the little ones choose what they want their masks to be and then custom paints them… Dominic chose Iron Person. There are some extremely particular folks in this earth.

He could also decide whichever music he wished to be piped in each time and selected Xmas music just about every day 💕🌲 He thoroughly rocked it and the persons working there have been certainly phenomenal.

➡️ Next… we get to be residence for a few of months, then it is back to NY for yet another spherical of immunotherapy, a new established of scans, and a further bone marrow biopsy. 

📘 In the meantime, he commenced kindergarten this 7 days! He’ll be joining class almost until his oncologist presents him the go-forward to show up at in particular person, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all began escalating again! He’s had a ton of electrical power, has acquired again all of the body weight he missing following surgical procedure and that previous round of chemo and is or else accomplishing actually, genuinely perfectly.

❤️ Thank you all for your continued prayers, it suggests so a lot to our family members.


In other news, I am setting up to get some e-mails scheduled out heading into the fall and holiday break season to refresh some internet site content material. So, you can glimpse ahead to me popping into your inbox extra consistently in the coming months 🎉